life has gotten very busy, not been posting much, keep telling myself that i will upload and write more once things calm down…don’t know when that will be! lol
he is 4 years now, almost 5. Still has eczema and asthma but not as bad since the pets moved in with grandma. Lilly (cat) passed away from old age, Lola (dog) is still living with grandma. we can’t visit even and i miss her but it is for the best and i know she’s being loved and looked after. Lucas has been tested and does have autism but because of his age it’s unclear where he is on the spectrum. we have had children first helping us with this since he was about two. when we started he was almost non-verbal, he could say number and alphabet but didn’t care much about anything else and with their help he is now saying full sentences, asking questions, starting to say things he’s done. they’ve also helped with textures and feeding as well. he used to just scream at dirt and grass but now he will walk on it and jump in puddles and even mud if he has rain boots on. the peppa pig books have also helped with this and with getting him to let me brush his teeth and bath. legos have also helped with getting him in the the tub and to feed himself, though he is still only eating baby food. since we started homeschooling he has improved speech, started reading and talking about pictures in books, allowing me to read books to him, can say numbers almost all the way to 40 and count down from 20, can do basic addition and subtraction with visual aid (sometimes just his fingers), he can name almost all of the shapes, loves flash cards and memory games, is becoming interested in sports, dancing and singing, taking things apart and putting them back together, he is even learning empathy, though sometimes it does seem mechanical and just from memory it’s still very good. he loves routines, now we have good night time routine in place he will lay in his bed and after a few stories fall asleep or lay and play with a toy after stories and fall asleep on his own with no swaddling or rocking or carrying him, this is a vast improvement even just from last year. he has many behaviors of an older child, some of a grown up but also some of a baby and we seem to be re-entering terrible twos.
what i find works best for calming him, preventing or sometimes even fixing his breathing(with inhalers using as prescribed), getting him to sleep on rough nights, getting from point a-b when he is cranky or not yet used to new route, is baby/toddler wearing! i started with the same as most parents start with (crotch dangler), it worked until he was about 17lbs. then i got a moby until he was about 30lbs, loved it! did a bit of research and made some temporary woven wraps(with woven fabric on clearance at fabric land) and bought some that looked like african wraps at value village. when those became too much work or some he got too heavy for, i bought a mei tai from walmart but it didn’t go knee to knee, so using some good strong fabric i made an outside panel and also a small bit to make it go high enough to cover his back.if you get one of those then hand wash, i messed up my straps by putting it in the wash. he is now too heavy for it though, so i am getting into tulas. i found some sites that ship to canada and give points for every dollar spent and i can use those points towards future purchases. so far i have fizz and it is very comfy but it is hand wash only and only if absolutely necessary and he is a heavy sweater and pees often, so i guess i will need a few. winter solstice is on it’s way, i’m also looking into getting some used in order to get certain patterns and hopefully save money when possible. we are also in love with tula blankets now. they are just the right size for him. he has recently started pulling blankets over his head in his sleep and one night, very unexpectedly, he wrapped a sheet around his head. i check on him frequently though, he was still breathing and sleeping. he’s only used short blankets since then. i plan to sew the tula blankets together in an L or j shape to prevent this from happening again. i also want to make a duvet for his weighted blanket, using the tula blankets because they are so soft and and he loves the patterns. i ordered accessories and our first sleep-sheet-bag from 3 lil’ monkeys & co. and will post pix and links when they arrive. as for his peeing, he was fully potty trained and now i’m guessing it’s because of his autism that he is going in his pants again. he knows he has to go but he won’t because he’s too fixated on what he’s doing. he can become obsessive about certain things and when he does it is impossible for him to transition from one activity to another. for diapers we use grovia AI2 with the 100% cotton snap in inserts and at night time i add a flip insert (like used in flip training pull ups) as well because he is such a heavy wetter at night. he has 1-3 we diapers a night and sometimes (but not often with the grovia or the walmart off brand disposables) leaks and wets the bed, so i usually have 3-4 wet protect fitted sheets on bed. that way i just peel the wet one off, gets him back into bed quicker and it way easier on me. easter seals covers a portion of the cost of his diapers. he’s also on disability which i use to buy him extra pants and undies for when he refuses to wear diapers and extra bedding and some laundry costs but only related to amount that i have to do as result of his autism and have also just been approved for at home support worker. so disability and respite will pay $x amount for someone to watch him just for an hr or two a week so i can rest and for someone to come and work with us on some of his autism related issues, though i don’t know yet what they can to that children first isn’t already doing. i guess we will find out. i was even lucky enough to get dietary needs covered because he has a sever allergy to dairy. so the money i’m saving in those area frees up little bits of money for the things like tulas…but we do still need to eat and pay the bills. which reminds me…essex power has that reduced billing thing now and i really need to print, sign and send! so much grown up paper work i have been putting off. tendinitis and other joint pains are acting up, can’t carry him right now or even a carton of soy milk for that matter. i am only able to write this because the pain meds are still fresh in my system but even with those it is kind of killing me to type. maybe a hot bath is in order today. bye for now. will write more when i can! 🙂